The Invisible Reality of High-Functioning Autism: Understanding its Impact and Finding Support

High-functioning autism, also known as autism spectrum disorder (ASD), is a neurological condition that affects millions of people worldwide. Despite its prevalence, autism remains widely misunderstood, and individuals with high-functioning autism often face unique challenges in their daily lives.

Life has been challenging for an array of reasons. Mainly and specifically due to the way my brain perceives and interacts with my environment. As a “high-functioning autistic” it has been my job not to disturb other people’s life by being part of it in any way. The stimming was beaten out of me by the time I was in the second grade I had to emotionally regulate by writing, exercising and learning tech. Autistic children in earlier generations were severely abused and neglected. Of course, older generations lacked the information or professional help that today is readily available everywhere for free. This includes the tons of misinformation rooted in superstitions and ignorance. 

I can't remember how many times I was called a retard or a spaz. In school and at home, the punishment for being hyperactive and disruptive was to stand in a corner still, holding heavy books for an hour. Imagine being in this situation over and over again. It was torture. Until I learned to sit and stand perfectly still like a robot. Some people joke about my demeanor. Stoic, as if I were in a perpetual job interview. Minding my “p”s and “q”s.  This carried to “friendships and parasocial relationships”, to the point of complete isolation. 

Academics were the only constant in my life that didn't bring dread or pain. It was the only space where I could be myself and not be punished. I love structure and analysis.  Even with my dyslexia and dysgraphia, learning and experimenting with concepts was my little heaven. I have always had an unsettling presence. My mom used to call me Wednesday Adams, not the quirky 90s version, nope, the original. The vampire comparisons never stopped. Not because of my appearance but more because of my demeanor. I have no idea what they are talking about; I am freaking hilarious. 

I had what I thought were good wholesome friendships in school. The classic riding our bikes out unto the sunset

is a type of delusion. Translation; I was involved in many, one-sided relationships with very hurt people who thought that sharing space with me; gave them some sort of control over their lives.

There is no need to be callous. I am only responsible for accessing my own life, not judging others. But yes their callousness and disregard for my wellbeing is also acknowledged.  

There is a significant correlation between Complex Post-Traumatic Stress Disorder (CPTSD) and autistic individuals who have experienced trauma and abuse specifically for being autistic. In my case, the abuse is already part of the equation due to the nature of the family dynamic. The introduction of an autistic child into a dysfunctional home just made things more dire. Keep in mind we are wired to survive, but the extra layer of vulnerability primes us in the spectrum to be abused and used. The consequences of this kind of trauma will end in a total burn-up. Listen to those that this is their reality. Listen to the kids when they express distress due to overstimulation. 

 Autistic individuals are more vulnerable to trauma due to:

1. Social stigma and discrimination

2. Lack of understanding and acceptance

3. Inadequate support and accommodations

4. Forced conformity to neurotypical standards

This trauma can lead to CPTSD, characterized by:

1. Emotional dysregulation

2. Dissociation

3. Hypervigilance

4. Avoidance behaviors

5. Negative self-perception

Autistic individuals may experience trauma from:

1. "Autism-specific" abuse (e.g., being forced into "quiet rooms" or subjected to "behavioral modification" techniques)

2. Bullying and social exclusion

3. Inadequate medical care and mistreatment

4. Family dysfunction and generational trauma

CPTSD in autistic individuals can manifest differently due to autistic traits, such as:

1. Difficulty with emotional regulation

2. Sensory processing challenges

3. Executive function deficits

4. Social communication differences

It's essential to recognize and address the intersection of autism and trauma, providing:

1. Trauma-informed care

2. Autistic-led support and advocacy

3. Safe and accepting environments

4. Accommodations and understanding

By acknowledging and addressing this correlation, we can work towards healing, acceptance, and empowerment for autistic individuals who have experienced trauma.

Statistics:

- According to the Centers for Disease Control and Prevention (CDC), 1 in 44 children in the United States has autism.

- The Autism Society estimates that 70% of adults with autism have co-occurring mental health conditions, such as anxiety or depression.

- A staggering 85% of college students with autism report feeling isolated and struggling to connect with peers.

Impact on Daily Life:

Individuals with high-functioning autism may excel in specific areas, but they often face difficulties with social interactions, communication, and sensory processing. This can lead to:

- Difficulty maintaining relationships and friendships

- Struggling with executive function skills, such as time management and organization

- Feeling overwhelmed by sensory stimuli

- Experiencing anxiety and depression

Resources and Support:

- Autism Society

- ADHD Foundation

- The Autistic Self Advocacy Network (ASAN)

- And yes social media content creators with a firsthand account in these areas. 

Determining Support Needs:

- Consult with a professional, such as a psychologist or psychiatrist, for a comprehensive evaluation

- Assess individual strengths and challenges

- Develop a personalized support plan, including accommodations and strategies for daily life

Remember, autism is a spectrum, and each individual's experience is unique. By understanding and acknowledging the challenges faced by those with high-functioning autism, we can work towards creating a more inclusive and supportive community. Your loved ones are suffering in silence because no one taught us to listen to each other. Let's embrace neurodiversity and empower individuals to thrive!